Category Archives: Preemies

March of Dimes strengthens stance against Makena pricing; is it enough?

Tweet thisLast night I posted that I was contacted by, and had a productive discussion with, Doug Staples, SVP of Marketing for the March of Dimes. Today, I let him know that a comment under that post showed that although … Continue reading

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Posted in Makena, March of Dimes, Preemies | 4 Comments

March of Dimes knows it messed up, and is trying to earn our trust back

Tweet thisAfter my last blog post on the subject of the Makena controversy, I got an email from Doug Staples, SVP of Strategic Marketing & Communications for March of Dimes, asking if he could try to answer some of my … Continue reading

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Posted in Makena, March of Dimes, Preemies | 6 Comments

Can the March of Dimes win back our trust after the Makena debacle?

Tweet thisI’ve already written about the Makena controversy and why it has made me question my support of the March of Dimes. I’m still not convinced that I should trust them again. They effectively supported a process that got FDA … Continue reading

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Posted in Makena, March of Dimes, Preemies | 7 Comments

Makena controversy makin’ me think twice

Tweet thisThe March of Dimes saved my son’s life. There is no debate about that. If it weren’t for decadron, surfactant, and other medications, therapies and treatments whose development was supported and championed by the March of Dimes, The Kid … Continue reading

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Posted in Makena, March of Dimes, Preemies | 13 Comments

Fortress Around My Heart

Today, I want to talk about losing perspective after a loss, and how difficult it can be to regain it. As I mentioned earlier, when we lost Benjamin I basically went about not acknowledging how deeply I was hurt. I tried to carry on and put on a good face in hopes of convincing myself that I was OK. The depth of the denial made the pain go on much too long. But it would prove to hurt much more than my recovery. Continue reading

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Posted in Kids, Life, Loss, Preemies | 2 Comments