Comments for Nowhere Special http://nowherespecial.net ...always wanted to go there Sat, 24 Dec 2011 23:19:45 +0000 hourly 1 http://wordpress.org/?v=3.1.1 Comment on How did we get where we are with Makena? by Mark http://nowherespecial.net/2011/03/how-did-we-get-where-we-are-with-makena/comment-page-1/#comment-2252 Mark Sat, 24 Dec 2011 23:19:45 +0000 http://nowherespecial.net/?p=215#comment-2252 According to CharityNavigator.org, Howse's compensation for the fiscal year ending December 2009 was $633,132. I can't find my notes from the original post right now. According to CharityNavigator.org, Howse’s compensation for the fiscal year ending December 2009 was $633,132. I can’t find my notes from the original post right now.

]]> Comment on How did we get where we are with Makena? by Diana http://nowherespecial.net/2011/03/how-did-we-get-where-we-are-with-makena/comment-page-1/#comment-2220 Diana Tue, 20 Dec 2011 20:45:59 +0000 http://nowherespecial.net/?p=215#comment-2220 Curious. How did you find the salary of the March of Dimes President? I have been trying to find this information for this person and others but do not know where to look. Thanks! Curious. How did you find the salary of the March of Dimes President? I have been trying to find this information for this person and others but do not know where to look.

Thanks!

]]> Comment on Tonight, I’m proud to be a New Yorker by Sharla http://nowherespecial.net/2011/06/tonight-im-proud-to-be-a-new-yorker/comment-page-1/#comment-1062 Sharla Mon, 27 Jun 2011 15:37:35 +0000 http://nowherespecial.net/?p=251#comment-1062 Wow, I've never heard of anyone who actually shares my belief in the separation of church and state before! You summed my feelings up nicely- marriage can be done in the church/by a minister if any couple wants it, but no couple should be allowed to "marry" legally. Legally, I believe anyone can have a "union" or "partnership." It was important for me personally to get married in a church, but the legal part of it was more a formality. I wanted the church ceremony more than the legal documents, but I was fortunate that they go hand-in-hand. I also agree with your comments about the people who marry/divorce like it's not a big deal. Marriage is a huge deal and should not be taken lightly! As a religious person, I find it disgusting that the sacrament of marriage is so misused by so many people! I hope and pray that even in the Bible belt we'll soon see something change and that this unjust discrimination will end! Wow, I’ve never heard of anyone who actually shares my belief in the separation of church and state before! You summed my feelings up nicely- marriage can be done in the church/by a minister if any couple wants it, but no couple should be allowed to “marry” legally. Legally, I believe anyone can have a “union” or “partnership.” It was important for me personally to get married in a church, but the legal part of it was more a formality. I wanted the church ceremony more than the legal documents, but I was fortunate that they go hand-in-hand.
I also agree with your comments about the people who marry/divorce like it’s not a big deal. Marriage is a huge deal and should not be taken lightly! As a religious person, I find it disgusting that the sacrament of marriage is so misused by so many people!
I hope and pray that even in the Bible belt we’ll soon see something change and that this unjust discrimination will end!

]]> Comment on Tonight, I’m proud to be a New Yorker by Dave in San Francisco http://nowherespecial.net/2011/06/tonight-im-proud-to-be-a-new-yorker/comment-page-1/#comment-1051 Dave in San Francisco Sat, 25 Jun 2011 17:03:27 +0000 http://nowherespecial.net/?p=251#comment-1051 Hey Mark, I found my way here via the link you posted on Twitter. Just wanted to thank you for your post and also to say that I completely agree with you about the use of the term "marriage". If we had different terms for legal and religious unions, I think we might have avoided a lot of the debate and controversy. In a wonderful coincidence, once I send this, I'm headed downtown for the SF Pride festival. Be well, Dave Hey Mark,

I found my way here via the link you posted on Twitter. Just wanted to thank you for your post and also to say that I completely agree with you about the use of the term “marriage”. If we had different terms for legal and religious unions, I think we might have avoided a lot of the debate and controversy.

In a wonderful coincidence, once I send this, I’m headed downtown for the SF Pride festival.

Be well,
Dave

]]> Comment on March of Dimes knows it messed up, and is trying to earn our trust back by Mark http://nowherespecial.net/2011/03/march-of-dimes-knows-it-messed-up-is-trying-to-earn-back-trust/comment-page-1/#comment-907 Mark Fri, 13 May 2011 03:41:43 +0000 http://nowherespecial.net/?p=202#comment-907 Hi Constance, If you read the posts that came after this, you'll see that March of Dimes broke its contract with KV and Ther-Rx so that they could take an adversarial position against the pricing of Makena and support continued prescriptions of 17P through compounders to ensure that expectant moms can continue to have access to it without being put into financial jeopardy. I was very pleased to have played a part, however small, in encouraging them to take that step. Meanwhile, Makena is an approved therapy that is on formulary so that women whose doctors will not write an off-label prescription will still have the option, and in seven years we'll have official generics on formulary. Since March of Dimes has made the commitment to fight the pricing of Makena and given up the revenue that they would have received from donations by Ther-Rx, I have resumed my support of the organization, and I'll be walking on Sunday to raise money for the cause. I'll be joined by my 12-year-old son, who was a 28-weeker that is here because of Decadron, artificial Surfactant, and other March of Dimes-supported therapies. Thanks for sharing your story. I'm glad that your son made it through OK. Hi Constance,
If you read the posts that came after this, you’ll see that March of Dimes broke its contract with KV and Ther-Rx so that they could take an adversarial position against the pricing of Makena and support continued prescriptions of 17P through compounders to ensure that expectant moms can continue to have access to it without being put into financial jeopardy. I was very pleased to have played a part, however small, in encouraging them to take that step. Meanwhile, Makena is an approved therapy that is on formulary so that women whose doctors will not write an off-label prescription will still have the option, and in seven years we’ll have official generics on formulary.

Since March of Dimes has made the commitment to fight the pricing of Makena and given up the revenue that they would have received from donations by Ther-Rx, I have resumed my support of the organization, and I’ll be walking on Sunday to raise money for the cause. I’ll be joined by my 12-year-old son, who was a 28-weeker that is here because of Decadron, artificial Surfactant, and other March of Dimes-supported therapies.

Thanks for sharing your story. I’m glad that your son made it through OK.

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